An American mother revealed her experience in raising her daughter Hazel, born in Mobius Syndrome, a rare neurological disorder that causes paralysis of the face.
The story started when Victoria Labri, the 30 -year -old for the first time, noticed something different in Hazel during pregnancy, when her eyes looked open during ultrasound tests, according to an article published by the British Independent newspaper.
And this note – which was initially considered very nice – gained a different meaning after Hazel’s birth in December 2024, where her eyes were completely open, and Bobby and Victoria (Hazel’s parents) realized immediately that there were sermons.
Two weeks later, and after undergoing MRI tests, Hazel was diagnosed with Mobius syndrome, confirming the cause of her complete facial paralysis and inability to blink or smile.
Despite the challenges, Victoria learned to read Hazel’s feelings through visual communication and fine signals.
“I can read her feelings by looking at her eyes and the way she moves, I can feel happy, she is supposed to speak in the future, and she is now making some voices,” said Victoria – who is forced to close Hasel’s eyes manually to rest.
According to the UK facial paralysis, Mobius syndrome is a very rare neurological disorder that appears from birth, and is characterized by weakness or paralysis of facial muscles that control facial expressions and side eye movements.
Hazel has some movement on the lowest left side of her lips, but the rest of her face is completely paralyzed, she is unable to eyelashes and can move her eyes to the top and bottom, but not from side to side.